I'm sorry it's been so long since I've updated! Aidan has been doing so well! We are so proud of him. He has started physical therapy once every other week and occupational therapy once a month. He was found to be very mildly delayed. His doctors think it's all because of his eye problems and it will all be fixed after his surgery except for the increased muscle tone in his arm and his weak core muscles. His sessions will most likely increase as he gets older. There's only so much a six month old can do in PT and OT right now. He will be evaluated by a vision therapist after his eye muscle surgery, which is TOMORROW! I'm terrified for him. It sounds so painful. His eye doctor will be loosening and tightening his eye muscles in both eyes. We are praying it works. This surgery should straighten his eyes. He could possibly have trouble following objects with his eyes for the rest of his life and I'm not supposed to "expect perfection" (according to his eye doctor). Aidan has amazed us so much already so I think he will continue to do so. Please say a prayer for a safe surgery and speedy recovery. We were told he will be more uncomfortable after this surgery but Drew has taken a few days off work so I will be able to hold him 24/7 to keep him comfortable while Drew cares for the girls and the house. He will have stitches on the whites of his eyes and they will be red for a while. I'm praying he isn't in much pain afterwards. He's so strong. It truly amazes me. He really is my hero.
We had a phone conference with the two lawyers we are working with regarding Aidan's case. They had a pediatric neuro radiologist look over Aidan's CT scan from right after birth. He's been doing this for many years and said he's never seen anything like this. Which isn't surprising because neither has any other doctor we've worked with. He said by looking at Aidan's scan it looks like he was dropped (he wasn't) or experienced a blunt force trauma to his head. They are thinking since Aidan was face up that the midwife tried to turn him during the birth. In doing so, she fractured his skull which caused the hemorrhage. It also showed in my medical records that no OBGYN was ever consulted after my ultrasounds showed Aidan's head size in the 95th percentile. No OBGYN was consulted when I was having so many problems while in labor either. Our lawyers do think we have a malpractice case. They will be getting Aidan's most recent medical records and scans and we will go from there. I know no amount of money will change any of this but we feel they should be held responsible for their negligence. This way all of Aidan's medical bills will be covered. If he needs anything that our insurance does not cover then we will be able to do it and money won't be an issue. He shouldn't have to suffer because of them.
I was suffering from some major PPD for awhile after Aidan's birth but I'm doing much better now. For the most part. I still have bad days. I think I always will. I have to remind myself every day to think of the positive. Things could have ended up much worse. I've seen articles of parents losing their babies from birth injuries and skull fractures caused by doctors. Some babies have severe brain damage, can't walk, eat, talk, etc. Aidan's physical therapist said that Aidan wouldn't be doing anything he's doing now if he had severe Cerebral Palsy. I can't change what happened so I thank God every day that Aidan is still with us and doing so well. His neurologist was shocked that his MRI came back so good because of how bad his CT scan was. She said miracles really do happen.
I will write another post updating everyone on how Aidan's surgery goes. Thank you for all the support and prayers. They are working!