I'm sorry it's been so long since I've updated! Aidan has been doing so well! We are so proud of him. He has started physical therapy once every other week and occupational therapy once a month. He was found to be very mildly delayed. His doctors think it's all because of his eye problems and it will all be fixed after his surgery except for the increased muscle tone in his arm and his weak core muscles. His sessions will most likely increase as he gets older. There's only so much a six month old can do in PT and OT right now. He will be evaluated by a vision therapist after his eye muscle surgery, which is TOMORROW! I'm terrified for him. It sounds so painful. His eye doctor will be loosening and tightening his eye muscles in both eyes. We are praying it works. This surgery should straighten his eyes. He could possibly have trouble following objects with his eyes for the rest of his life and I'm not supposed to "expect perfection" (according to his eye doctor). Aidan has amazed us so much already so I think he will continue to do so. Please say a prayer for a safe surgery and speedy recovery. We were told he will be more uncomfortable after this surgery but Drew has taken a few days off work so I will be able to hold him 24/7 to keep him comfortable while Drew cares for the girls and the house. He will have stitches on the whites of his eyes and they will be red for a while. I'm praying he isn't in much pain afterwards. He's so strong. It truly amazes me. He really is my hero.
We had a phone conference with the two lawyers we are working with regarding Aidan's case. They had a pediatric neuro radiologist look over Aidan's CT scan from right after birth. He's been doing this for many years and said he's never seen anything like this. Which isn't surprising because neither has any other doctor we've worked with. He said by looking at Aidan's scan it looks like he was dropped (he wasn't) or experienced a blunt force trauma to his head. They are thinking since Aidan was face up that the midwife tried to turn him during the birth. In doing so, she fractured his skull which caused the hemorrhage. It also showed in my medical records that no OBGYN was ever consulted after my ultrasounds showed Aidan's head size in the 95th percentile. No OBGYN was consulted when I was having so many problems while in labor either. Our lawyers do think we have a malpractice case. They will be getting Aidan's most recent medical records and scans and we will go from there. I know no amount of money will change any of this but we feel they should be held responsible for their negligence. This way all of Aidan's medical bills will be covered. If he needs anything that our insurance does not cover then we will be able to do it and money won't be an issue. He shouldn't have to suffer because of them.
I was suffering from some major PPD for awhile after Aidan's birth but I'm doing much better now. For the most part. I still have bad days. I think I always will. I have to remind myself every day to think of the positive. Things could have ended up much worse. I've seen articles of parents losing their babies from birth injuries and skull fractures caused by doctors. Some babies have severe brain damage, can't walk, eat, talk, etc. Aidan's physical therapist said that Aidan wouldn't be doing anything he's doing now if he had severe Cerebral Palsy. I can't change what happened so I thank God every day that Aidan is still with us and doing so well. His neurologist was shocked that his MRI came back so good because of how bad his CT scan was. She said miracles really do happen.
I will write another post updating everyone on how Aidan's surgery goes. Thank you for all the support and prayers. They are working!
Sunday, January 4, 2015
Thursday, September 25, 2014
Post surgery update and birth story
Aidan only had surgery 48 hours ago and he looks amazing! Dr. Klombers did such a wonderful job. We heard so many rave reviews about him and they were all true. The evening before his surgery our insurance decided to deny Aidan's surgery saying it was cosmetic. Oh please, the child couldn't open his left eye more than a slit and would go blind without the surgery. Is it a common thing for three month olds to have cosmetic surgery?! We were livid. So Dr. Klombers called our insurance and spoke with the medical director himself. All while he was on vacation! We got a phone call back an hour later saying he took care of it haha. Right before Aidan's surgery the next morning he came in and took pictures of him to send to the insurance to prove it was absolutely necessary. The evening after his surgery he even emailed Drew checking up on Aidan and answered some questions we had. He just went above and beyond for Aidan. There needs to be more doctors like him. He said he will get us over this bump in the road and Aidan will be looking great. He diagnosed him with Congenital Fibrosis. Aidan will need another surgery on his eye muscles because they're extremely tight and even under general anesthesia they were stuck outward. We aren't sure how well he can see yet and he said Aidan will most likely be right eye dominant and we will need to patch his right eye for awhile but that's no big deal to us. He will get there 😊 I was expecting a horrible outcome (because I'm pretty pessimistic now after everything that happened with Aidan's birth). I'm so thankful for all the amazing doctors that have helped my boy through all this!
I wanted to give everyone the details of my birth story. I know a lot of people are wondering what happened!
On June 20th I called my doctors office because the nasty headache I was having wasn't going away and my blood pressure kept going pretty high. I was also seeing spots and felt really weird, if that makes sense. I had Preeclampsia with Kailey so I had a high risk of developing it again. I had been into the office and sent to triage a couple times for this because of my blood pressure being elevated and traces of protein in my urine. They had me come in for another appointment. There was still protein in my urine, my reflexes were really strong, my blood pressure was high so the doctor had them take me to triage by wheelchair to be monitored. When I got there my blood pressures stayed in the 160/110 range which is extremely high for me. My normal is about 115/75. The doctor decided I needed to be induced. I was terrified because I was only 37w4d but then I was terrified to keep him in too because of how high my blood pressure was. I figured he would be safer on the outside than the inside. Boy, was I wrong.
Drew scrambled to get the kids taken care of and everything situated but he got there. I was taken to L&D right from triage. My midwife (that I love and had NO part in Aidan's injuries, btw) started my induction by placing a foley bulb in my cervix. It created some pretty strong contractions right away and they got so bad the nurses and I all thought he would be born that night haha. They ended up subsiding though and my midwifes shift ended at 8pm so she missed his birth. We had some visitors and dinner then things calmed down and the nurse gave me an Ambien to help me sleep. The next morning the next midwife came in and took out the foley bulb me it dilated me to four centimeters. I was worried about progressing extremely fast like I did with Ava and Maycie so they started me slowly on Pitocin. My nurse kept losing Aidan's heartbeat on the monitors then she ended up finding it at the top of my belly so she was concerned. She called in the midwife so she felt around to make sure he was still head down. She wasn't sure so she called in another midwife to check. She checked too and said she was "pretty sure he was head down". She said they could do an ultrasound to check but never did. I was really doing well with the contractions on my own I was surprised. Then the midwife came back in and broke my water. I was 6cm. I was still doing well with my contractions but I decided on an epidural for the pushing. Feeling the pushing has always been the part that scares me. This epidural ended up hurting more than the contractions! I had some relief for maybe an hour or two but then the epidural stopped working completely. They kept telling me to hit the button for more medicine and I did over and over and no relief. They called in the anesthesiologist and he gave me more medicine and it helped a little but only on the left side. There was nothing else they could do so I gave up with that haha. They didn't even believe that it wasn't working. My nurse started poking me on the belly asking if I could feel what she was doing and I could. Geez he's my fourth baby I know what's normal! I told them I needed to push so they checked me and I was fully dilated. I started pushing and nothing was happening. He wasn't desending. Then they discovered he was face up and sort of off to the side. A baby needs to be face down during delivery. I was pushing for over an hour and hurting and nothing was happening so they told me I could take a break. I told them this didn't happen with my other babies and something didn't feel right. They told me "every pregnancy is different". I asked if I needed a c-section and they said "Oh no, you don't want a c-section. You don't want that recovery". Well, I would have given myself a c-section if I would have known what would happen to my sweet boy. They let me rest for a little and had me put this big ball type thing between my legs and had me lie on my side to try to get him to turn. By that time it was another shift change so another midwife came in and told me I had to start pushing again. I was really hurting and exhausted from pushing and nothing happening and I didn't want to. I just wanted a c-section which is HUGE for me because I'm terrified of them. I asked for more time and she said no. I started pushing again and nothing was happening. I was getting sick and felt like I couldn't breathe. I asked for oxygen and that did help a little. The rest is really foggy because I was so out of it but I do know his heartrate started to decelerate. I pushed for a while and at 8:30pm on June 21 my miracle was born. His cord was wrapped around his neck twice and he was in respiratory distress. He was bright white, limp and not moving. His forehead was extremely swollen and the back of his head was smashed in and he was so bruised. His left eye was also stuck facing outward (and still is). I thought he was dead. Drew, Britt and I were terrified and nobody was doing anything about it. I felt like I couldn't breathe and was crying and asking what was wrong with him. The midwife asked if I had genetic testing done and when my last ultrasound was. I said pretty bitchy "Yes and it was normal and my last ultrasound was LAST WEEK!" so she had nothing else to say. The nurses were giving him oxygen and he wasn't getting color or crying so they called in the NICU. Aidan peed right on the NICU doctor haha. His APGAR scores were 4 and 6. 7, 8 or 9 indicate a healthy baby. They took him from me and right for a CT scan. I had no idea what was even happening. It felt like a dream, a horrible dream. I just kept thinking how this stuff just doesn't happen to people. All I knew was I needed to pray. And I did. Over and over and over. I'm not extremely religious but I didn't know what else to do. Then my blood pressure went through the roof and they couldn't get me to stop bleeding and my uterus wouldn't contract. I started to get really sick. The nurse gave me medicine to get my uterus to contract so I would stop bleeding. Luckily it worked. Then they started me on magnesium sulfate to keep me from seizing. I don't really remember much because that medicine is nasty but I remember them putting padding around the bed incase I started to have a seizure. I had to stay in L&D because I needed to be watched closely. I fell right to sleep because the magnesium makes you extremely hot, nauseous and tired. At around 2:00am the NICU doctor came in. He told me Aidan had suffered multiple skull fractures and his suture lines had overlapped over his soft spots and created a hemorrhage. It was called a Subgaleal Hemorrhage. It only occurs in about 1.5 out of 10,000 births and 90% of them are caused by forceps or a vacuum being used during birth. Neither were used in his birth so everyone was stumped on how this happened(or so they said). He told me he might need to be transferred to a children's hospital and maybe need a transfusion and surgery to relieve the pressure in his brain. I had the choice of Hershey or CHOP. Since Hershey was closer and I was out of it I picked Hershey but Drew said to transfer him to the best hospital and told the doctor to make that decision. I wasn't allowed to walk because of the medicine and my blood pressure so they wheeled me into the NICU in my huge bed. Seeing my baby boy in an incubator hooked up to tons of machines and an IV was heartbreaking. I wasn't allowed to hold him, only touch his hand. He was already like six hours old and the only time I got to hold him was when they put him on me right after birth to cut his cord. I still was in shock and messed up from the medicine though. I only got to stay a few minutes and they still had no answers because nobody in that hospital had ever seen something like that happen before. They took me back to L&D and kept the magnesium going. I had to be on it for 24 hours. The next day I started to slowly feel a little better and become more conscious of what was going on. I couldn't watch tv because anything talking about babies made me want to cry and throw up. I also couldn't eat. All I could do was cry. At the end of that day I was taken off the magnesium and they transferred me to another room closer to the NICU. I was allowed to get up and walk a little and Drew wheeled me into the NICU to see Aidan in a wheelchair. I still couldn't hold him and they still had no answers on what was going to happen to him. His head was still swelling and all the nurses and doctors were afraid he wouldn't make it (they didn't tell me then, they told me when he was close to being discharged, everyone was amazed that he pulled through). Then that night I went into the bathroom in my room and I thought I felt a kick in my belly and realized he wasn't there anymore. I broke down. I fell to the floor and just started bawling so hard I couldn't breathe. I went out to Drew and just cried and cried. The part I had the most trouble with, and still do, is he was supposed to be a perfectly healthy baby. My body (or my choice in doctors) almost killed him. I never experienced pain like that before and I wouldn't wish it on my worst enemy. I felt like my heart was just torn out of my chest. I finally fell asleep then the next morning I needed to get out of that hospital room. Every nurse or doctor that came in to check on me kept saying how sorry they were and asking how he was. I couldn't handle it. Luckily I was in the GYN side of the hospital and not the postpartum part and I also had a sign on my door saying I had a baby in the NICU so everyone that came in knew what was going on. Well everyone already knew anyway because of how rare everything he went through was so everyone was talking about it. On Monday June 23rd I got to hold Aidan for the first time. He was two days old. I didn't get to hold my baby for TWO DAYS! I know this is nothing compared to some babies but it felt like an eternity. They wanted me to stay another day or so because of my blood pressure but I said no. I left, went home, cried, showered and went right back in to Aidan. I was in that NICU CONSTANTLY, all day and night except I would go home late at night to sleep then go back the next morning. I felt like hell but as soon as I got to my baby boy I forgot all about my pain. I just stayed there and held him and stared at him for hours. The nurses brought me in a recliner and would put privacy screens around us. It was just the two of us and I loved it. They were so amazing. They kept telling me this wasn't my fault. Of course I cried every time I left. I was a nightmare at home. I couldn't eat, sleep or do anything and I was either crying or yelling at everyone. I was either sad or mad. Those were the only two emotions I felt. On June 29th Aidan was discharged. I couldn't (and still don't) put him down. He was "only" in the NICU 8 days but it was the worst 8 days of my life. The NICU doctors said this was all caused because of his head size (which I had multiple ultrasounds showing his head was in the 95th percentile and nothing was done, don't even get me started) and also his position (which the midwives also knew about). His pediatrician said the midwife could have possibly tried to turn him while I was pushing and fractured his skull that way. We will never really know for sure. All we know is someone up there was looking out for our sweet Aidan and he truly is a miracle baby. He is stronger than anyone I've ever met. We have a long road ahead of us but I have faith that Aidan will get through all of this. NO MATTER WHAT he's perfect and I'll take care of him until the day I die if I have to. <3
I wanted to give everyone the details of my birth story. I know a lot of people are wondering what happened!
On June 20th I called my doctors office because the nasty headache I was having wasn't going away and my blood pressure kept going pretty high. I was also seeing spots and felt really weird, if that makes sense. I had Preeclampsia with Kailey so I had a high risk of developing it again. I had been into the office and sent to triage a couple times for this because of my blood pressure being elevated and traces of protein in my urine. They had me come in for another appointment. There was still protein in my urine, my reflexes were really strong, my blood pressure was high so the doctor had them take me to triage by wheelchair to be monitored. When I got there my blood pressures stayed in the 160/110 range which is extremely high for me. My normal is about 115/75. The doctor decided I needed to be induced. I was terrified because I was only 37w4d but then I was terrified to keep him in too because of how high my blood pressure was. I figured he would be safer on the outside than the inside. Boy, was I wrong.
Drew scrambled to get the kids taken care of and everything situated but he got there. I was taken to L&D right from triage. My midwife (that I love and had NO part in Aidan's injuries, btw) started my induction by placing a foley bulb in my cervix. It created some pretty strong contractions right away and they got so bad the nurses and I all thought he would be born that night haha. They ended up subsiding though and my midwifes shift ended at 8pm so she missed his birth. We had some visitors and dinner then things calmed down and the nurse gave me an Ambien to help me sleep. The next morning the next midwife came in and took out the foley bulb me it dilated me to four centimeters. I was worried about progressing extremely fast like I did with Ava and Maycie so they started me slowly on Pitocin. My nurse kept losing Aidan's heartbeat on the monitors then she ended up finding it at the top of my belly so she was concerned. She called in the midwife so she felt around to make sure he was still head down. She wasn't sure so she called in another midwife to check. She checked too and said she was "pretty sure he was head down". She said they could do an ultrasound to check but never did. I was really doing well with the contractions on my own I was surprised. Then the midwife came back in and broke my water. I was 6cm. I was still doing well with my contractions but I decided on an epidural for the pushing. Feeling the pushing has always been the part that scares me. This epidural ended up hurting more than the contractions! I had some relief for maybe an hour or two but then the epidural stopped working completely. They kept telling me to hit the button for more medicine and I did over and over and no relief. They called in the anesthesiologist and he gave me more medicine and it helped a little but only on the left side. There was nothing else they could do so I gave up with that haha. They didn't even believe that it wasn't working. My nurse started poking me on the belly asking if I could feel what she was doing and I could. Geez he's my fourth baby I know what's normal! I told them I needed to push so they checked me and I was fully dilated. I started pushing and nothing was happening. He wasn't desending. Then they discovered he was face up and sort of off to the side. A baby needs to be face down during delivery. I was pushing for over an hour and hurting and nothing was happening so they told me I could take a break. I told them this didn't happen with my other babies and something didn't feel right. They told me "every pregnancy is different". I asked if I needed a c-section and they said "Oh no, you don't want a c-section. You don't want that recovery". Well, I would have given myself a c-section if I would have known what would happen to my sweet boy. They let me rest for a little and had me put this big ball type thing between my legs and had me lie on my side to try to get him to turn. By that time it was another shift change so another midwife came in and told me I had to start pushing again. I was really hurting and exhausted from pushing and nothing happening and I didn't want to. I just wanted a c-section which is HUGE for me because I'm terrified of them. I asked for more time and she said no. I started pushing again and nothing was happening. I was getting sick and felt like I couldn't breathe. I asked for oxygen and that did help a little. The rest is really foggy because I was so out of it but I do know his heartrate started to decelerate. I pushed for a while and at 8:30pm on June 21 my miracle was born. His cord was wrapped around his neck twice and he was in respiratory distress. He was bright white, limp and not moving. His forehead was extremely swollen and the back of his head was smashed in and he was so bruised. His left eye was also stuck facing outward (and still is). I thought he was dead. Drew, Britt and I were terrified and nobody was doing anything about it. I felt like I couldn't breathe and was crying and asking what was wrong with him. The midwife asked if I had genetic testing done and when my last ultrasound was. I said pretty bitchy "Yes and it was normal and my last ultrasound was LAST WEEK!" so she had nothing else to say. The nurses were giving him oxygen and he wasn't getting color or crying so they called in the NICU. Aidan peed right on the NICU doctor haha. His APGAR scores were 4 and 6. 7, 8 or 9 indicate a healthy baby. They took him from me and right for a CT scan. I had no idea what was even happening. It felt like a dream, a horrible dream. I just kept thinking how this stuff just doesn't happen to people. All I knew was I needed to pray. And I did. Over and over and over. I'm not extremely religious but I didn't know what else to do. Then my blood pressure went through the roof and they couldn't get me to stop bleeding and my uterus wouldn't contract. I started to get really sick. The nurse gave me medicine to get my uterus to contract so I would stop bleeding. Luckily it worked. Then they started me on magnesium sulfate to keep me from seizing. I don't really remember much because that medicine is nasty but I remember them putting padding around the bed incase I started to have a seizure. I had to stay in L&D because I needed to be watched closely. I fell right to sleep because the magnesium makes you extremely hot, nauseous and tired. At around 2:00am the NICU doctor came in. He told me Aidan had suffered multiple skull fractures and his suture lines had overlapped over his soft spots and created a hemorrhage. It was called a Subgaleal Hemorrhage. It only occurs in about 1.5 out of 10,000 births and 90% of them are caused by forceps or a vacuum being used during birth. Neither were used in his birth so everyone was stumped on how this happened(or so they said). He told me he might need to be transferred to a children's hospital and maybe need a transfusion and surgery to relieve the pressure in his brain. I had the choice of Hershey or CHOP. Since Hershey was closer and I was out of it I picked Hershey but Drew said to transfer him to the best hospital and told the doctor to make that decision. I wasn't allowed to walk because of the medicine and my blood pressure so they wheeled me into the NICU in my huge bed. Seeing my baby boy in an incubator hooked up to tons of machines and an IV was heartbreaking. I wasn't allowed to hold him, only touch his hand. He was already like six hours old and the only time I got to hold him was when they put him on me right after birth to cut his cord. I still was in shock and messed up from the medicine though. I only got to stay a few minutes and they still had no answers because nobody in that hospital had ever seen something like that happen before. They took me back to L&D and kept the magnesium going. I had to be on it for 24 hours. The next day I started to slowly feel a little better and become more conscious of what was going on. I couldn't watch tv because anything talking about babies made me want to cry and throw up. I also couldn't eat. All I could do was cry. At the end of that day I was taken off the magnesium and they transferred me to another room closer to the NICU. I was allowed to get up and walk a little and Drew wheeled me into the NICU to see Aidan in a wheelchair. I still couldn't hold him and they still had no answers on what was going to happen to him. His head was still swelling and all the nurses and doctors were afraid he wouldn't make it (they didn't tell me then, they told me when he was close to being discharged, everyone was amazed that he pulled through). Then that night I went into the bathroom in my room and I thought I felt a kick in my belly and realized he wasn't there anymore. I broke down. I fell to the floor and just started bawling so hard I couldn't breathe. I went out to Drew and just cried and cried. The part I had the most trouble with, and still do, is he was supposed to be a perfectly healthy baby. My body (or my choice in doctors) almost killed him. I never experienced pain like that before and I wouldn't wish it on my worst enemy. I felt like my heart was just torn out of my chest. I finally fell asleep then the next morning I needed to get out of that hospital room. Every nurse or doctor that came in to check on me kept saying how sorry they were and asking how he was. I couldn't handle it. Luckily I was in the GYN side of the hospital and not the postpartum part and I also had a sign on my door saying I had a baby in the NICU so everyone that came in knew what was going on. Well everyone already knew anyway because of how rare everything he went through was so everyone was talking about it. On Monday June 23rd I got to hold Aidan for the first time. He was two days old. I didn't get to hold my baby for TWO DAYS! I know this is nothing compared to some babies but it felt like an eternity. They wanted me to stay another day or so because of my blood pressure but I said no. I left, went home, cried, showered and went right back in to Aidan. I was in that NICU CONSTANTLY, all day and night except I would go home late at night to sleep then go back the next morning. I felt like hell but as soon as I got to my baby boy I forgot all about my pain. I just stayed there and held him and stared at him for hours. The nurses brought me in a recliner and would put privacy screens around us. It was just the two of us and I loved it. They were so amazing. They kept telling me this wasn't my fault. Of course I cried every time I left. I was a nightmare at home. I couldn't eat, sleep or do anything and I was either crying or yelling at everyone. I was either sad or mad. Those were the only two emotions I felt. On June 29th Aidan was discharged. I couldn't (and still don't) put him down. He was "only" in the NICU 8 days but it was the worst 8 days of my life. The NICU doctors said this was all caused because of his head size (which I had multiple ultrasounds showing his head was in the 95th percentile and nothing was done, don't even get me started) and also his position (which the midwives also knew about). His pediatrician said the midwife could have possibly tried to turn him while I was pushing and fractured his skull that way. We will never really know for sure. All we know is someone up there was looking out for our sweet Aidan and he truly is a miracle baby. He is stronger than anyone I've ever met. We have a long road ahead of us but I have faith that Aidan will get through all of this. NO MATTER WHAT he's perfect and I'll take care of him until the day I die if I have to. <3
Thursday, September 18, 2014
First Post
Since this is my first post I will explain to everyone what conditions Aidan has and what his current situation is.
Aidan will be having surgery next Tuesday, September 23rd. He has been diagnosed with Ptosis in both eyes. Ptosis is defined as a drooping upper eyelid. Ptosis can be caused by damage/trauma to the muscle that raises the eyelid. The name of this surgery is a Frontalis Sling surgery. His eyelids will be attached to his eyebrows using a sling making it possible for him to be able to keep his eyelids open and SEE! 😊 I know he's such a strong boy but I'm terrified. Mainly because he will be put under general anesthesia. Luckily, if he handles the anesthesia well, we will be able to go home that evening. If not, I will be able to spend the night with him. Please keep my sweetie in your thoughts and prayers.
Aidan will be having surgery next Tuesday, September 23rd. He has been diagnosed with Ptosis in both eyes. Ptosis is defined as a drooping upper eyelid. Ptosis can be caused by damage/trauma to the muscle that raises the eyelid. The name of this surgery is a Frontalis Sling surgery. His eyelids will be attached to his eyebrows using a sling making it possible for him to be able to keep his eyelids open and SEE! 😊 I know he's such a strong boy but I'm terrified. Mainly because he will be put under general anesthesia. Luckily, if he handles the anesthesia well, we will be able to go home that evening. If not, I will be able to spend the night with him. Please keep my sweetie in your thoughts and prayers.
We also had our first appointment with his neurologist on August 25th. She said he has some increased muscle tone in his right arm which can be a sign of Cerebral Palsy. She mentioned a dimple at the bottom of his spine as well but I'm not too worried about that. His pediatrician said it looks normal. He will be sedated for an MRI of his brain and spine on October 29th. His neurologist also said he has Third Nerve Palsy, which I suspected. Third Nerve Palsy is damage to the third cranial nerve, which controls eye movements. It makes him unable to move his eyes normally. His left eye is much worse than the right. He can't get his left eye straight at all, it just drifts outwards. His right eye does drift outward sometimes but he can control that one much better. His pediatric ophthalmologist wants to wait until he is at least four months old to do surgery for that. He wants to see if the muscles will strengthen over time. More prayers please!
My biggest fear was he would have Cerebral Palsy so when his neurologist mentioned increased muscle tone of course I started to cry. She said it is intermittent and when I spoke with his pediatrician at his pre-surgery physical she said his seems to be very mild and only effects his right arm. She said they could do Botox injections in his arm to help loosen the muscles and make it easier for him to move. I was also terrified he wouldn't ever be able to walk but his amazing doctor calmed me down again and said his muscle tone in his legs looks normal so she doesn't think he will have problems walking. Unfortunately, since he's so young it's hard to tell right now but that made me feel ten times better. We have a long road ahead of us and he will continue to have his development monitored by his pediatrician, neurologist and pediatric ophthalmologist. The past few days have been extra rough for me but I have to try to stay positive. Aidan is such a sweetie and is always happy and has a smile on his face. He is what's getting me through this. He's the one going through all this pain and all these procedures but he's the strong one, not me. It truly amazes me.
Thank you for all the kind words, thoughts and prayers. You'll never know how much it means to us. I will keep everyone updated on our boy!
Brittany
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