First Post

Since this is my first post I will explain to everyone what conditions Aidan has and what his current situation is.

Aidan will be having surgery next Tuesday, September 23rd. He has been diagnosed with Ptosis in both eyes. Ptosis is defined as a drooping upper eyelid. Ptosis can be caused by damage/trauma to the muscle that raises the eyelid. The name of this surgery is a Frontalis Sling surgery. His eyelids will be attached to his eyebrows using a sling making it possible for him to be able to keep his eyelids open and SEE! 😊 I know he's such a strong boy but I'm terrified. Mainly because he will be put under general anesthesia. Luckily, if he handles the anesthesia well, we will be able to go home that evening. If not, I will be able to spend the night with him. Please keep my sweetie in your thoughts and prayers.

We also had our first appointment with his neurologist on August 25th. She said he has some increased muscle tone in his right arm which can be a sign of Cerebral Palsy. She mentioned a dimple at the bottom of his spine as well but I'm not too worried about that. His pediatrician said it looks normal. He will be sedated for an MRI of his brain and spine on October 29th. His neurologist also said he has Third Nerve Palsy, which I suspected. Third Nerve Palsy is damage to the third cranial nerve, which controls eye movements. It makes him unable to move his eyes normally. His left eye is much worse than the right. He can't get his left eye straight at all, it just drifts outwards. His right eye does drift outward sometimes but he can control that one much better. His pediatric ophthalmologist wants to wait until he is at least four months old to do surgery for that. He wants to see if the muscles will strengthen over time. More prayers please! 

My biggest fear was he would have Cerebral Palsy so when his neurologist mentioned increased muscle tone of course I started to cry. She said it is intermittent and when I spoke with his pediatrician at his pre-surgery physical she said his seems to be very mild and only effects his right arm. She said they could do Botox injections in his arm to help loosen the muscles and make it easier for him to move. I was also terrified he wouldn't ever be able to walk but his amazing doctor calmed me down again and said his muscle tone in his legs looks normal so she doesn't think he will have problems walking. Unfortunately, since he's so young it's hard to tell right now but that made me feel ten times better. We have a long road ahead of us and he will continue to have his development monitored by his pediatrician, neurologist and pediatric ophthalmologist. The past few days have been extra rough for me but I have to try to stay positive. Aidan is such a sweetie and is always happy and has a smile on his face. He is what's getting me through this. He's the one going through all this pain and all these procedures but he's the strong one, not me. It truly amazes me. 

Thank you for all the kind words, thoughts and prayers. You'll never know how much it means to us. I will keep everyone updated on our boy!

Brittany